You know that 20 pounds I was complaining about gaining in the last couple of months of chemo? I’ve lost nine pounds since Saturday. 🙁 I’m sure it will all balance out, I’ll feel better before the next round of chemo and eat like a little piggy and gain it all back. Then I’ll have chemo and lost another 10, and so on and so on. No fun though.
Yesterday I was contacted via Twitter by the software designer of the interval timer I use for doing short workouts at home.
I’ve been using it for a long time on and off but I started using the “post to twitter” portion. The post to Facebook never works for me.
What’s important here is that after a couple of nice tweets the rest of the conversation took place via Direct Message, so away from public view. He was telling me about another app that uses Binaural sounds and he thought it might help me with the chemo side effects. But since it was a direct message he was not looking for marketing, or exposure. He was just being nice! I was so appreciative.
I also have dabbled with Binaural sounds before and found them very effective for headaches as well as concentration. I use to use them a lot when I was working and people in the office wouldn’t stop talking and I needed to concentrate on work I have also used them very successfully to fall asleep. Have you ever tried them? Can’t hurt right?
Anyway, I just wanted to pass along that there are nice people out there, as I am sure you already knew.
of my blow by blow of cancer treatments, disease, testing and on and on?
Some days I am.
Went to Cincinnati for the weekend and met my newest Doctor. He seemed very nice, and most of the staff seemed very nice. I didn’t particularly like the offices. Seemed to big and too old. I’m spoiled by my luxury chemo places. We did get through the 20 some page release and consent form so that’s good to go.
Tomorrow I will have a full CT Scan, and on Wednesday morning I will have an echocardiogram (ultrasound of my heart). Then we will drive back down to Cincinnati on Wednesday afternoon and Thursday morning we will go back to my new doctors office and start chemo. The meds can have a bad cardiac reaction so they won’t start until I prove my heart is good. It is. The only other seriousness is you can have a bad reaction if your body rejects the medicine. Since the meds have antibodies from other bodies it’s possible to have a reaction just like if you had a transfusion or a transplant. It’s not a show stopper, they just put you on anti-rejection meds and keep going.
I have to see the doctor before I start chemo every time I go down. They will also keep much closer track of my tumors, with CT Scans, than they did for previous chemo’s. This is all part of the clinical trial program so they have to follow very specific guidelines.
My neighbor attacked me with hugs and tears in my driveway today. She was very sweet.
Went to yoga this morning. Assuming I am not too sick from the barium and dye tomorrow I will go work out tomorrow afternoon. OH! That was the other funny part of my doctors appointment in Cincinnati. I had worked out on Tuesday and did exactly 11 too many lunges. I could not get up or down from a chair without grabbing things, or walk without a limp. It’s very important that you are healthy enough and strong enough to be put on a clinical trial! It’s part of the form they fill out, is the patient able to get around okay and unassisted!! I had to make I explained to everyone that I wasn’t feeble, just stupid.
I will be very careful if I work out tomorrow to not over due legs because if I show up in Cincinnati unable to walk again they’re not going to believe me.
I NEED a vacation, I really do.