Can’t have a rainbow without the rain

You know that 20 pounds I was complaining about gaining in the last couple of months of chemo? I’ve lost nine pounds since Saturday. 🙁  I’m sure it will all balance out, I’ll feel better before the next round of chemo and eat like a little piggy and gain it all back. Then I’ll have chemo and lost another 10, and so on and so on. No fun though.

Yesterday I was contacted via Twitter by the software designer of the interval timer I use for doing short workouts at home.

https://play.google.com/store/apps/developer?id=Giorgio%20Regni&hl=en

I’ve been using it for a long time on and off but I started using the “post to twitter” portion. The post to Facebook never works for me.

What’s important here is that after a couple of nice tweets the rest of the conversation took place via Direct Message, so away from public view. He was telling me about another app that uses Binaural sounds and he thought it might help me with the chemo side effects. But since it was a direct message he was not looking for marketing, or exposure. He was just being nice! I was so appreciative.

I also have dabbled with Binaural sounds before and found them very effective for headaches as well as concentration. I use to use them a lot when I was working and people in the office wouldn’t stop talking and I needed to concentrate on work I have also used them very successfully to fall asleep. Have you ever tried them? Can’t hurt right?

Anyway, I just wanted to pass along that there are nice people out there, as I am sure you already knew.

 

 

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Why friends are like cookies

MaryBeth as a cookie!

 

  • The good ones are solid with a soft center
  • They are the perfect beginning to a day because they go great with coffee.
  • They are also the perfect way to end a day because they go great with vodka or beer. My mom taught me the beer pairing.
  • You can have all sorts of different kinds of cookies. Healthy filling cookies, or sweet and light wafery cookies. Doesn’t matter, they’re all good. It just depends on what you need right then and there.
  • You can eat really decadent cookies only once in a while and they will still be just as wonderful as they were the last time.
  • Sometimes you don’t know how badly you need a cookie until it shows up in your mailbox and makes you choke (up).
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Clinical Trial #1 – A blog in Captions

 

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Our new GPS thanks to the Petty Theives in our neighborhood

 

Ah yes....Corey in a hotel room. His natural habitat
Ah yes….Corey in a hotel room. His natural habitat

 

 

White Castle Veggie Sliders for dinner the night before chemo. Probably not a good idea.
White Castle Veggie Sliders for dinner the night before chemo. Probably not a good idea.
Our hotel room had a lovely view of the trees, sadly not warm enough to open the window.
Our hotel room had a lovely view of the trees, sadly not warm enough to open the window.
The hotel was booked up and I ended up with a 2 queen bed room instead of a king. In the middle of the night I got out of our shared bed and moved to a a bed by myself. See if you can figure out why. This is Coreys bed when he woke up.
The hotel was booked up and I ended up with a 2 queen bed room instead of a king. In the middle of the night I got out of our shared bed and moved to a a bed by myself. See if you can figure out why. This is Coreys bed when he woke up.
This is the bed I slept in
This is the bed I slept in
I do not like the offices in Cincinnati. They are big, and too many sick people in a small space and kind of ganky looking.Everything needs painted.
I do not like the offices in Cincinnati. They are big, and too many sick people in a small space and kind of ganky looking.Everything needs painted.
Except the people. The people are lovely. This is the medical tech who has taken my blood and vitals the last two times. She has only been there a week and we have enjoyed teasing her.
Except the people. The people are lovely. This is the medical tech who has taken my blood and vitals the last two times. She has only been there a week and we have enjoyed teasing her.
This is Ashley. She is my Clinical Research Nurse. She if very nice, and very helpful.
This is Ashley. She is my Clinical Research Nurse. She if very nice, and very helpful.
And hey...tote bag.
And hey…tote bag.
The nice chemo places provide drinks and snacks. 'Cause once you're hooked up, you are stuck.
The nice chemo places provide drinks and snacks. ‘Cause once you’re hooked up, you are stuck.
The sign says "long haired freaky people, need not apply" or "snacks are for patients only". You choose.
The sign says “long haired freaky people, need not apply” or “snacks are for patients only”. You choose.
My view for the day.
My view for the day.
Me
Me
I love sesame sticks.
I love sesame sticks.
Every Chemo place has had TERRIBLE coffee. This is no exception
Every Chemo place has had TERRIBLE coffee. This is no exception
They don't even put the names of the meds on the bags. Just "Investigational"
They don’t even put the names of the meds on the bags. Just “Investigational”
We were there so long that we were the last people to leave.
We were there so long that we were the last people to leave.
Except for the nurses. The one in the foreground is Kim. She was mine for the day. We liked her.
Except for the nurses. The one in the foreground is Kim. She was mine for the day. We liked her.
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Are you tired

of my blow by blow of cancer treatments, disease, testing and on and on?

Some days I am.

Went to Cincinnati for the weekend and met my newest Doctor. He seemed very nice, and most of the staff seemed very nice. I didn’t particularly like the offices. Seemed to big and too old. I’m spoiled by my luxury chemo places. We did get through the 20 some page release and consent form so that’s good to go.

Tomorrow I will have a full CT Scan, and on Wednesday morning I will have an echocardiogram (ultrasound of my heart). Then we will drive back down to Cincinnati on Wednesday afternoon and Thursday morning we will go back to my new doctors office and start chemo. The meds can have a bad cardiac reaction so they won’t start until I prove my heart is good. It is.  The only other seriousness is you can have a bad reaction if your body rejects the medicine. Since the meds have antibodies from other bodies it’s possible to have a reaction just like if you had a transfusion or a transplant. It’s not a show stopper, they just put you on anti-rejection meds and keep going.

I have to see the doctor before I start chemo every time I go down. They will also keep much closer track of my tumors, with CT Scans, than they did for previous chemo’s. This is all part of the clinical trial program so they have to follow very specific guidelines.

My neighbor attacked me with hugs and tears in my driveway today. She was very sweet.

Went to yoga this morning. Assuming I am not too sick from the barium and dye tomorrow I will go work out tomorrow afternoon. OH! That was the other funny part of my doctors appointment in Cincinnati. I had worked out on Tuesday and did exactly 11 too many lunges. I could not get up or down from a chair without grabbing things, or walk without a limp. It’s very important that you are healthy enough and strong enough to be put on a clinical trial! It’s part of the form they fill out, is the patient able to get around okay and unassisted!! I had to make I explained to everyone that I wasn’t feeble, just stupid.

I will be very careful if I work out tomorrow to not over due legs because if I show up in Cincinnati unable to walk again they’re not going to believe me.

I NEED a vacation, I really do.

 

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