This may go down in history as the slowest move EVER!
My contractor was originally scheduled to start on Monday, then it was moved to Tuesday. This morning I got a call from the owner of the company letting me know that my assigned guy has food poisoning so hopefully he’ll start on wednesday. Not that it really matters that much. He is only step one. No moving can happen until after the floors are in and that is tentatively scheduled for Sept 4. But it may be later. Geesh.
It feels like I am running around in circles these days.
I went to my doctor last week and we finally talked about the actual continuing care plan. Chemo every three weeks for as long as it keeps working. PET Scan and ECHO every three months. my echocardiogram will be next week, and my next PET is in a couple of weeks I think. My doctor is trying to find ways to work with the insurance company on the PET since the protocol is for CT Scans. We already know that CT is no longer the way to go for me.
Most chemo drugs lose their effectiveness after a certain amount of time. Cancers adapt to them and the drugs will no longer work. My drugs are not the typical chemo drugs and are not normally used together unless there is an additional chemo. I have limited information available to me about my specific protocol. I asked my Dr about the long term effectiveness since I can’t find any data and he looked quite uncomfortable and started hemming and hawing. He then of course gave me the info because he knows I really do want to know. He said my drugs do also lose their effectiveness and in his experience it’s usually one to two years. I did not like that answer! I was hoping for like ten to twenty years! The good news is there is already another medicine that is on the horizon to come next. It really can be difficult sometimes knowing that you’re always trying to stay one step ahead.
I still love my condo even as I occasionally find things that are broken or need to be updated. I just feel so comfortable there. Today while I was working on cleaning my bakers rack the sky got all cloudy and the condo dim so I had to turn on more lights, it was lovely. 🙂 We went to IKEA this weekend and one of the things I bought was a lovely new bedspread. I was originally going to hold out for chenille but I liked this set. Inexpensive and lightweight and they had it in dark brown. Corey likes dark brown so I bought it, and then today I bought a new set of dark beige sheets and washed them. So when we move we’ll have all new stuff on the bed. I like that. I think I will still keep an eye out for a chenille spread I like but use it for Spring.
That is All!
I just got home and I am having trouble keeping my eyes open!
Closing went off without a hitch this morning. We met the previous owner and his son. They were very very nice and I found the owner who is quite elderly to be charming.
Then Corey and I went to the condo to check on everything and dance naked around our new space. Okay, no nakedness. We kicked everything, and pushed every button to find every nook and cranny that we needed to tend to. We made mental lists, and then forgot them. Then we can home.
I was home 10 minutes when the water company called and said they were on the way to the condo and I needed to be there, so back I went and then just stayed all afternoon meeting with the handyman company who will be doing a bunch of work for us. Also figured out how to program the garage door opener into our cars systems so now we don’t need the openers. That’s pretty cool.
Then my daughter came over and then we went out to dinner.
I am very very happy to have my new little place. Of course now the real fun begins. Construction, remodels, floors, packing moving, unpacking. It’s going to be a very long next four weeks!
I will have cancer until I die.
No matter if it’s next week or 20 years from now – I will always have, and be in active treatment for cancer.
It’s a sobering thought. I must remember to ask my doctor at my next appointment for some guidelines for what happens from here on out.
Is it any different than me having auto-immune thyroiditus and being treated for that for the rest of my life?
How about the neuropathy, lymphodema, kidney disease, menieres and vestibular migraines?
All of my diseases except cancer are not in spell-check. Interesting.
I actually feel pretty good today considering the morose post. I have a headache and not even close to enough sleep. Occasional waves of nausea and a bright red hot face. All in all, quite workable. Now my chemo’s have been switched to Friday, which I kind of like. That way someone is here to take care of me when I don’t feel good. 🙂
The next chemo will be both medicines at standard dose with no steroids so YAY.
That’s really all I have to say.
Oh wait – have you every Watched Race to Escape? Game Show on SCI
I am also watching Sense8 on NetFlix.
Can’t read today, brain is too foggy. 🙁