I woke up thinking – soon…I will be fixed soon! My pulmonologist is referring me to an infectious disease specialist and I just want to call the ID Doc at 8:04 and tell them to call me in a prescription. I want to get this started.
I have spent MONTHS watching my breathing getting more and more difficult. If I am just sitting I have super great oxygenation – 98% but as I start moving it gets much harder to breathe, quickly. And last week I started coughing again. After not being able to see anything wrong and having everyone say my lung function is good – because they do not test you walking up stairs – for so long I was really starting to think it was just me. Or it was just the way lungs work when you have had tumors and treatment for so long. I am pretty sure treatment for this is going to be horrible, but at least there is treatment.
Last night after working out – mostly I am just working on muscles and keeping my lung function at this point – I received a gift.
All of my workout wear has something written on that I chose because of the statement or the charity I purchased it from. CancerSucks.com, The Jimmy V foundation, F*ckCaner. But what do you say when someone gives you this and says “I thought of you when I saw it”? Well, you say thank you, and then later, in your head you say Thank you for helping me be a size small again!
Man, I wish I had found this group of people years ago. Even if my lungs get so bad I can not work out, I want to go and just absorb the energy.
And I forgot to sho you my shower curtain I think!
I finally got some paisley in my life!!
I may be one of the luckiest people I know. I feel almost guilty for how lucky I am and how much I have.