Just Checking in!

I am doing great!

First day of summer – got up and opened all the windows. What a perfectly beautiful morning. Low 60’s and sunshine.

All of my meds seem like they are doing their jobs and my side-effects are, while not gone, at least at tolerable levels. The shot I am getting for my digestive system every month is definitely helping. I would encourage anyone with ongoing digestive issues of unknown cause to talk to their doctor about it. What can it hurt to try?

This is my list;

Feet & Hands – neuropathy – this is pretty painful and aggravating but I’m dealing with it. My feet and fingers are both painful and numb at the same time. I also have neuropathy on my tongue, which is just weird.

Digestive system – well, between the heavy doses of antibiotics, chemo meds and past damage from abdominal radiation you would think I would just give up and go liquid diet only but I keep on trying. I take a lot of meds and for the most part am doing okay.

Arms – the side effect from one chemo med leaves me with incredible sensitive skin on my arms but the compound cream I get is very helpful. Over the year of getting perjeta I have learned not to touch my arms and that is the biggest help.

Lungs – well – I don’t know. They don’t seem a lot better yet, but it’s just hard to tell.

Heart – echocardiogram every three months, one this week, and seems like we’re doing good!

Nose – Still running. Probably permanent damage – nothing to do about it.

Eyes – yes, this is a new one. The antibiotic I was on for a month that caused me all the terrible terrible trouble also was the one with the side effect of vision loss. Going to make an appointment with my ophthalmologist today. Probably fine, just paranoid at this point..

Ears – HA! Fooled you! Nothing new on the ears. Still have the Vestibular issues, I get dizzy and have permanent and temporary hearing loss but we’re pretty stable. As long as I don’t think about it my brain naturally adjusts. If I think or talk about it the room tips and I notice the hearing loss. Isn’t that weirdest thing?

Head – I am back to mostly feeling positive and HAPPY! I may be taking handfuls of pills a day, but I wake up EVERY SINGLE MORNING!

I hope you are as lucky as me, and appreciate every thing you have. If you don’t, then you need to decide why, and change it. Every day that you are unhappy is just a waste, and shame on you. No, let me say that how I am saying it here: SHAME ON YOU!! So many people with no choice and here you are wasting your time on being in situations that don’t enhance your life.



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